David and Joshua are reading! And even spelling! ^_^ All thanks to some lessons I found making learning about the “magic e” (aka silent e) fun and engaging. :D So proud of my boys and they are pretty proud of themselves too. They were so excited when I pointed out they just read over 31 words and spelled at least 15!
If I can get them to get over their audience anxiety issues, I will film them and share with you all. :)
Joshua is doing great with his PT team. One of them even worked in some finger strengthening and fine motor control using some stuff similar to silly putty. She sent us home with some when I couldn’t locate any at the store.
The roku remote is now in a sandwich baggie in the freezer…
Why? Because of David… Oh how many things could be answered with “Because of David”. 😔
Hope is such a powerful thing. Especially when it starts getting extra feedings from outside sources and not just from memories or inward thoughts and beliefs.
Took Joshua to his first Physical Therapist appointment the other day. She can help him.
Had David with me (of course) and he was wild, disconnected, running, getting into everything, scattered…. (of course…)
I was a walking wreck. Boys had stayed up almost all night again. I had gotten a little over 3 hours of sleep before this appointment. Every ounce of my strength and energy was being used to put on a smile, try not to tremor and shake so much, keep track of David, and do my best to still pay attention to the therapist.
The therapist noticed. She noticed it all. She can help David too.
I left that office with the promise of help that I’ve so badly needed for so terribly long. I even got to stand there as someone else for a change helped get David down yet again from the stairs and away from the toy room. I got to wait quietly on the side as someone else for a change took on the task of keeping David from running away or from getting hurt due to his curiosity and lack of danger awareness.
I got to listen as I dealt with only one boy for a change (Joshua was having a mild overload towards the end because David was so wild and overwhelming) while the therapist took the first steps towards keeping her promise of help. Arranging for the needed referrals (OT, PT, Behavioral, Speech), checking into where we would be served best and quickest, working with the front to coordinate scheduling so as to keep my calendar as calm as possible. (Think it’s hard taking David out once? At least he’s still happy when it’s just once or twice. Try wearing him out by taking him out daily and see what happens…)
All wrapped up with a caring smile and skillful, kind, and calm interactions with my son.
Hope. Such a beautiful and powerful thing.
Grandma came to visit us for Christmas and learned a very valuable lesson with Joshua on Christmas night. You have to say what you mean and mean what you say… AND you have to be SPECIFIC with what you say. This picture truly does paint a thousand words. Grandma and Joshua were being silly for pictures and Grandma said “let’s pretend to pick each other’s nose”. Her intention never included Joshua actually sticking his finger in her nose, but that’s what he did. LOL Grandma didn’t say, “and be sure not to really stick your finger in” after all. ;) The picture is blurry because mommy was too busy laughing to hold the camera still. haha ^_^
Ok, my mom found out about the above post (about being more specific with Joshua lol) and I’ve just been reprimanded in the cutest way possible. She was working on the yearly gingerbread project with the boys while I was posting the funny picture and decided to change her design to send me a message. ;) LOL Message heard Grandma! And it was delicious! ;)
This week has been a bit of a whirlwind and filled with our own class of crazy as usual. I’ve been struggling to keep my spirit in the right place too as hard thought out plans keep going by the wayside as life just takes over. Tonight though, at Christmas Eve service, something very precious and personal took place. In the midst of all the restless movement, tears from the music being too loud (sensory issues), moving out to the hall, dancing with David, and trying to listen to the sermon and keep the boys from running off at the same time, something happened that really meant alot to me tonight. I got to share a special communion moment with Joshua.
He has not been baptized because he can’t handle the sensory overload that it would throw him into, but he has demonstrated time and time again that though his years are young, his faith is pure and strong. He loves Jesus and has a heart for God. He has even surprised me by reaching out in moments that normally would be ones he shies away from and using the gift of being a child to make a new friend and soften a hardened heart, telling them about Jesus and about how much He cares and even sharing his personal stories of how Jesus has been there for him.
So tonight, when someone brought the communion tray out in the hall for us so we wouldn’t be left out, and Joshua asked what it was and wanted to take part, I included him. We talked about Jesus and what it means to follow Him and trust Him to lead and guide us. We talked about His sacrifice and how important it was so that we could be with Him. Then I split my wafer in half, and shared half my juice, and we prayed together thanking Jesus for what He has done so that we could know Him and be with Him.
Christmas Communion shared with my son. No better Christmas present for this mom than that. <3
Since moving here to Idaho, there has been a lot of blessings my family has found. To get these benefits though, there was a lot we had to leave behind in Kansas. Dearly cherished friends, the amazing community of Maize, special people from various local shops, restaurants, or small organizations/events that will forever have a place in our hearts as highly treasured friends, and specific food items that helped make it easier to get David and Joshua to eat what they needed to for necessary vitamins and other health issues.
The latter category was something I wasn’t expecting to have happen. One of the biggest things affected were David’s tacos. I had to get specific shells from the store in order to get him to eat his tacos at home. Tacos were served often in my home due to them being one of only two ways to get David to eat red meat, which he needed to keep his carnitine levels in check to help keep the seizures and more serious regressions at bay after finding out they were connected to a metabolic disorder that prevents his body from making enough carnitine to stay stable. After getting here to Idaho, we made the unpleasant discovery that our shells are not sold here and the only ones available are ones David absolutely refuses to eat. We have no Taco Shop to turn to out here either so I sent out a message to my Kansas friends that I needed help getting my hands on the special shells.
A friend of mine that I’ve known since high school responded with a care package packed full of them. ^_^ Thanks so much Polly! :)