Sorry for the delay in new posts. The boys have been keeping me up into the early morning hours for about a week now and I am exhausted. lol They’re starting to settle back down again though thankfully.
We saw David’s pediatrician yesterday (Tuesday) and had a wonderful visit for a change. The doctor has always been great but David actually was fully cooperative this time and even openly initiated and interacted for a change through having the doctor check his Woody doll too. lol It was cute. : )
Today (Wednesday), David had an EEG to start the process of trying to figure this all out and based off the reports of his repeated regressions and the severity of some of them, the doctor at the hospital also wanted to get him an MRI to check for brain damage and/or scar tissue I think she said (another piece of the puzzle is how she explained it) but my insurance denied it. They then tried to do a ct scan, but David suddenly jolted awake from the anestesia and was frightened and violent so they brought him back to the room so I could help him calm down.
He was a brave little trooper over all though and I am so proud of him. He did his best and that is always enough for me. : ) Even though the doctors were not able to get a closer look at David’s brain, they did get the EEG testing completed and I was told I should be able to hear the results either in the next couple of days or when I see the pediatrician again (working on getting that appt set up).
We had a bit of a scare during the recovery time afterwards though today that has me a bit nervous. David was already unhooked from everything and walking around again, so we don’t know for sure what caused the episode, but David had another staring spell again where he just checked out on us all of a sudden and couldn’t be reached. This one lasted longer than any of the others have though which kind of troubles me.
Someone left the door to the hallway open and he saw it and started heading out into the hall. I called out for him to halt and he stopped abrubtly at the edge of the tile and carpet barrier… He doesn’t usually just stop like that without some form of resistance so I started calling his name and told him to come here but he wasn’t responding. When I went over there and got in front of him he was just staring off into space again and I couldn’t get his attention.
I was snapping my fingers and clapping my hands in his face, raising my voice while calling his name, even tapping his shoulders and arms. Nothing… not even a flinch or a blink. About the time the nurse was ready to call someone he suddenly snapped out of it, shook his head and said “pretty”. He kept saying that as an answer to everything we said so I finally just told him to show me and he pointed past me. There was a picture on a section of the carpet directly behind me. When I moved back so we both could see it again, he said “pretty” again and started walking off on me again. When we tried to re-direct him and get him back in the room, he wasn’t responding again and just kept talking about seeing his pretty. The nurse finally succeeded at getting him to follow her through some nearby doors where there was an animal mural on the wall and shortly after that, we were able to get a slightly dazed, but at least with us, David back into the room again.
To be honest, it was kind of weird and a bit scarey… That was one of his longest too. At least 1 to 2 minutes from the time he suddenly halted in his tracks to the time he shook his head and started saying “pretty” over and over. Not sure how long the daze that we ended up with afterward lasted.
I sure do hope we can get to the bottom of all this soon… I hate the waiting game. : (