An Autism Diary

A day in the life of David Hartley

The Zebra Life Begins…

David has officially, and sadly, joined the zebra side. I admit I was shocked when he ended up diagnosed with Ehlers-Danlos Syndrome right alongside Joshua and me when we saw the genetics specialist last summer. Up until recently though, I’ve been able to put that reality on the back burner as he wasn’t symptomatic in day to day life.

Then the pain complaints started coming in. Same spot, frequently, no obvious injury to account for it. Started watching him closer and found the source. His elbow (now both are doing it) was popping in and out of joint whenever he would straighten his arm too fast or too often in one sitting. This means it happens a lot when he’s practicing his martial arts, and it also happens a lot when he gets excited and starts flapping his arms in stim mode. It even happens to him while playing with his trains or when reaching for something. šŸ˜¦

Official therapy evaluation is next week to see what can be done, if anything. Most things would require his cooperation and understanding which so far he hasn’t been able to give very well in this area.

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2 Comments

  1. He’ll be in our thoughts and prayers.

    • Thank-you, I really appreciate it. His PT evaluation is Wednesday. We’ll find out more then.

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